Always Good – 4/26/2011

Always Good

Yesterday was a big big day for Charlie. We got to the hospital around 5:30 am for her port placement, bone marrow biopsy, and first chemo treatment.
She did so well! Usually on these “fasting” mornings, she is a bear, but she was playful and pleasant. She went right to the nurse and just laid her head on her shoulder and snuggled a bit while saying goodbye to me with her eyes that were already getting droopy. Sweet moment!
All went well with both procedures, and Dr. Watts came and met with us to say we would be moving to Clinic 8 after her recovery and they would be talking with us, and then giving her the first dose of chemo.
The nurses were great! I want to especially thank Heidi, who administered the chemo. She was so sweet and patient, and answered so many questions for me. I arrived that morning tense and unsure, and left relaxed, confident, and at peace.

Charlie had very little pain after the procedure. Tylenol has been working great! She has been her normal little sweet self, all last night and this morning. She is unphased by her port, and only when I change her clothes, she points to it and matter-of-factly says “owwieee”.

One of our biggest initial challenges is keeping her away from a lot of people, crowds, etc. She is used to being in the middle of it all. :-) She has about 5 other meds she is taking at home, but so far, hasnt fought us too hard.

We are praying she tolerates all of the treatment well as we go along!

There is a song  by Jesus Culture that has been going over and over in my head, and the some of the words are  ”You are always good, always good, always good…” That about sums it up. God, You are ALWAYS good! Thankful for the blessings that each day brings.

A huge thank you to our family and friends and our new friends who also are in battle against Histiocytosis. You all have been such a strength to us, and we cherish your thoughts and prayers!

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